Submission in response to call for input by the OHCHR on study on statistics and data collection under article 31 of the UN Convention on the Rights of Persons with Disabilities. 29 October 2021 Submitting organisations: The Africa Albinism Alliance, Standing Voice, The Albino Foundation, Positive Exposure- Kenya, Source of the Nile Union of Persons with Albinism welcome the opportunity to jointly submit their contribution to the OHCHR study on statistics and data collection under article 31 of the UN Convention on the Rights of Persons with Disabilities. • • • • Africa Albinism Alliance, established in February 2021 is a consortium of organizations working to promote – through human rights advocacy – the dignity, rights and welfare of persons with albinism and their family members in Africa. The Alliance aims to ensure that the African Union Plan of Action to End Attacks and other Human Rights Violations Targeting Persons with Albinism (2021-2031) is implemented at the national level, including through national action plans with multi-year budgets; and that the positive effects of these measures concretely advance the enjoyment of human rights by persons with albinism in the Africa region. Standing Voice is an international non-governmental organisation based in Tanzania, Malawi and the UK. Founded in 2013, it promotes and protects the rights of people with albinism and their families across Africa. The organisation works as a catalyst to amplify marginalised voices, enabling individuals to shape their own lives and futures The Albino Foundation (TAF) is an independent non-governmental/not-forprofit organisation incorporated with the Corporate Affairs Commission of Nigeria. Founded in 2006, TAF is principally an organisation established for persons with albinism, other disabilities and vulnerable groups. TAF is a special focus organization that advocates for the recognition and respect of the rights and socio-economic inclusion of persons with disability in Nigeria. Headquartered in Abuja – Nigeria, The Foundation bears a national spread with chapters across all 36 states of Nigeria and the FCT – Abuja. Positive Exposure- Kenya is a non-profit organization that exists to promote the well-being of persons with albinism (PWA) by providing an opportunity for PWA, their families and communities to celebrate diversity, challenge stigma and celebrate each individuals’ extraordinary uniqueness. Positive Exposure was initiated by Jane Waithera (a young woman with albinism) inspired by the works 1|Page

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